Asia-Pacific Journal of Oncology Nursing

: 2015  |  Volume : 2  |  Issue : 4  |  Page : 242--249

Living in limbo: Being diagnosed with oral tongue cancer

Genevieve Philiponis1, Kelly M Malloy2, Sarah H Kagan3 
1 School of Medicine, Temple University, Philadelphia, PA, USA
2 School of Medicine, University of Michigan, Michigan, USA
3 School of Nursing, University of Pennsylvania, Philadelphia, PA, USA

Correspondence Address:
Sarah H Kagan
School of Nursing, University of Pennsylvania, Philadelphia, PA

Objective: Oral tongue cancer presents clinical challenges to effective diagnosis that affect patient experience. Patient experience of the diagnostic process is poorly described, making opportunities for nursing intervention unclear. Methods: We qualitatively describe, using constant comparative analysis, oral tongue cancer diagnosis using data from a larger grounded theory study of oral tongue cancer survivorship. Using constant comparative analysis - in keeping with the methodology of the main study - we analyzed 16 survivor interviews for themes explaining the patient experience of oral tongue cancer diagnosis. Results: We termed the broader diagnostic process DQliving in limbo.DQ This process includes the themes describing the peri-diagnostic process itself - DQself-detected lesion,DQ DQlack of concern,DQ DQseeking help,DQ DQnot a straightforward diagnosis,DQ and DQhearing the diagnosis.DQ Entry into treatment concludes DQLiving in LimboDQ and is described by the theme DQworry and trust.DQ Conclusions: Our findings are limited by retrospective interviews and participant homogeneity among other features. Future research with prospective designs and diverse groups of people at risk for and diagnosed with oral tongue cancer, as well as targeting those who have had negative biopsies with no eventual diagnosis of oral tongue cancer, will build on our findings. Further, study of patient experience in other sociocultural context and healthcare systems is needed to inform nursing science and practice. Finally, DQliving in limboDQ suggests that clinician and public education about oral tongue cancer diagnosis is needed.

How to cite this article:
Philiponis G, Malloy KM, Kagan SH. Living in limbo: Being diagnosed with oral tongue cancer.Asia Pac J Oncol Nurs 2015;2:242-249

How to cite this URL:
Philiponis G, Malloy KM, Kagan SH. Living in limbo: Being diagnosed with oral tongue cancer. Asia Pac J Oncol Nurs [serial online] 2015 [cited 2020 Nov 27 ];2:242-249
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