|Year : 2021 | Volume
| Issue : 6 | Page : 732-736
When Things Happen – The Story of COVID-19, Palliative Care, and An NGO
Ayda G Nambayan, Rumalie A Corvera, Loyda Amor N Cajucom, Carmel D Vicencio
The Ruth Foundation for Palliative and Hospice Care, Inc. Alabang, Metro Manila, Philippines
|Date of Submission||05-May-2021|
|Date of Acceptance||10-Sep-2021|
|Date of Web Publication||04-Oct-2021|
Ayda G Nambayan
The Ruth Foundation for Palliative and Hospice Care, Inc. Alabang, Metro Manila
Source of Support: None, Conflict of Interest: None
Several natural disasters and the appearance of the coronavirus disease 2019 (COVID-19) pandemic created stressful situations to many health-care workers in the Philippines. New health-related challenges surfaced, and health-care workers felt lost since many of the challenges were either directly or indirectly caused by the fast-spreading coronavirus infections and its variants. Further, the way people die also changed, causing confusion and influencing the Filipino grief and bereavement processes. In response to the need of the health-care workers, a nongovernmental organization (NGO) through its education portal created and offered free webinars, aimed to help health-care workers understand and make sense of what was happening, thus empowering them with knowledge on how to manage the challenges and provide better care to the patients and the community as well. This article relates the process of planning and implementing online webinars during the era of social distancing and COVID-19 pandemic.
Keywords: COVID-19 pandemic, on-line education, professional/social responsibility
|How to cite this article:|
Nambayan AG, Corvera RA, Cajucom LA, Vicencio CD. When Things Happen – The Story of COVID-19, Palliative Care, and An NGO. Asia Pac J Oncol Nurs 2021;8:732-6
|How to cite this URL:|
Nambayan AG, Corvera RA, Cajucom LA, Vicencio CD. When Things Happen – The Story of COVID-19, Palliative Care, and An NGO. Asia Pac J Oncol Nurs [serial online] 2021 [cited 2021 Dec 1];8:732-6. Available from: https://www.apjon.org/text.asp?2021/8/6/732/327477
| Introduction|| |
Globally, 2020 turned out to be a very difficult year. For many Filipinos, 2020 is especially challenging since they have not only endured the pandemic crisis but several natural disasters as well. Early in the year, the eruption of Taal Volcano disrupted much of the daily activities in the major city of Manila and many of its neighboring provinces in Southern Luzon. Even before the people could adequately recover, the country reported its very first case of the coronavirus disease 2019 (COVID-19) infection, brought in by two vacationing tourists from China. The two patients followed different trajectories and demonstrated different severity of the disease, causing an alarm that the novel coronavirus had varied characteristics, still unknown at that time. As the infection became more widespread, with community lockdowns and quarantine requirements, the demands on the country's health-care system were more palpable than ever. The burden created by COVID-19 was further magnified by shortages of hospital beds, limited manpower and other essential supplies, increasing mortality rates, coupled with the social stigma and economic impact of the disease. Mid-year, through the rainy season, the country was again devastated by severe weather conditions and heavy typhoons that further placed the country's resources in jeopardy. Many Filipinos died with unnatural and untimely deaths, affecting not only the families but the health-care workers as well. The unexpected losses potentially compromised the coping capacities of many.
Realizing that patients, families and frontliners were highly at risk, a non-governmental non-profit foundation: The Ruth Foundation (TRF) responded through its Hospice Opportunity for Patient Empowerment (HOPE) program by offering free online education to health-care workers. The overall goal of the project was to support health-care workers who deal with the COVID-19 pandemic and armed with the knowledge, they can, in turn, support the patients and families who are under their care.
Based in Metro Manila, Philippines, TRF's primary purpose is providing community-based opportunities for service in the care of the home-bound elderly and those with life-limiting illness. Together with the service component, TRF also has the HOPE program which aims to educate and train nurses, volunteers/caregivers, and other community-based health professionals so they can, in turn, empower their patients and families in palliative and hospice care. In its provision of palliative and hospice care education, TRF partners with the US-based End-of-Life Nursing Education Consortium (ELNEC), a long-time and well-established project between the American Association of Colleges of Nursing and the City of Hope Medical Center.
In the era of the COVID-19 pandemic, ELNEC created an online resource for nurses to equip them in dealing with COVID-19 patients and their families. The on-line project is called ELNEC Support for Nurses During COVID-19 and is available for free. The site contained recorded video presentations of ELNEC Core Modules including slides that were adapted to fit the needs and requirements in caring for patients and families with COVID-19. It also contains free infographics and video vignettes to support nurses who are frontliners so they can effectively navigate the many unknowns of caring for COVID-19 patients and their families.
Realizing that there was a need for education, the TRF training team requested and was granted permission to use the ELNEC-COVID-19 project in hosting an educational webinar related to pandemic and palliative care. An electronic survey asking for interest in the program, possible logistical processes (most feasible time, length of program, and others), and current experience in caring for COVID-19 patients and families were sent to a selected group of health-care providers. Results were overwhelmingly positive for the need of such a program with an echoing interest to learn more about the COVID-19 infections, its symptoms and management, and a futuristic look at what the world would be like after the pandemic. Content discussions with the in-house experts resulted in a webinar that would cover the current state of the COVID-19 infections, how it relates to palliative care with an overall theme of embracing the needs of the health-care providers as they relate and care for the COVID-19 patients and their families.
The training team reviewed the content in the ELNEC COVID-19 project and chose the content that would be applicable to the webinars. Three of the ELNEC COVID-19 videos were chosen and five additional lectures were developed by the foundation experts based on the identified needs from the survey, and to complete the spectrum of what is required when caring for COVID-19 patients and their families. Ethical considerations were added since COVID-19 brought many related ethical concerns and for many Filipinos, ethics are most commonly based on the beliefs and traditions of the family. The TRF experts thought that having a lecture/discussion on ethics would help health-care workers manage the often unclear and controversial issues related to COVID-19 care in particular and palliative care in general. All the materials were adapted and contextualized according to the culture, beliefs, and ways of the Filipino people. [Table 1] shows the eight topics contained in the TRF-ELNEC COVID-19 webinar project. The three-video presentation from the ELNEC COVID-19 project was followed by a series of discussion points to further enhance and localize the content.
Entitled “TRF-ELNEC COVID-19 Webinar Series,” the program has been implemented twice, initially with Metro Manila participants (mostly the survey respondents), and the second program was offered for health-care workers in the different Visayan Islands. The participants were all recruited through an invitational letter sent individually to them or through the medical and/or nursing directors of area hospitals. The free webinar offering was also advertised in the Foundations' Facebook page. [Table 2] shows the demographics of the participants from the first and second offerings.
The Zoom platform (www.zoom.us) was used to conduct the webinars and proved to be very helpful in tracking the attendance of each participant in both groups. The Chat function of the Zoom platform allowed live discussions and exchange of ideas among participants and faculty. A certificate of attendance was given for each webinar attended and a certificate of completion was given to participants who attended all of the webinars.
The first program was offered on Mondays and Thursdays (12:00 N to 1:00 PM live and recorded for replay at 8:00–9:00 PM) for 4 weeks from June to July 2020. The format was lecture/discussion and using the Zoom Chat function, questions were raised with discussion and answers following. Being the first time the Foundation has done a webinar series, the training team considered it to be a learning curve on which to base future offerings in this type of format. Although comments and program evaluations were generally favorable, the training and the faculty group decided to revise program delivery for the second offering. The revisions were based on faculty scheduling, participant's comments, and time availability. Further, project staff used many hours in processing needed data and documentation requirements during the first webinar. During the second offering, the technology team increased their involvement and effectively used technology resources to streamline the processes of registration through certifications.
For the second webinar offering, the lectures were all prerecorded and were made available in the Foundation's Facebook page for participant viewing several days before the live meeting. This gave the participants time to assimilate the webinar content, prepare their questions, and be more involved during the live session. The time for the live meeting was also changed to after dinner (8:00 PM to 9:00 PM) to accommodate the faculty and the participants who were working. At this time, data about COVID-19 have increased and there were more patient's experiences to base discussions on. It was decided that a real-life case scenario from the government COVID-19-designated hospital will be used to illustrate the needs and issues related to caring for a COVID-19 patient. Moreover, testimonies from different practitioners in the field were included in specified modules to highlight practices that can be adapted by the participants. The content of the webinars remained basically the same except for some updates due to increasing knowledge about the COVID pandemic and mandated government requirements such as mandatory wearing of face masks, face shields, and social distancing. At this time, the live meetings were also recorded and were made available, along with the videos of the lecture, in the TRF Facebook page for future reference and use.
During the live session of the webinar, discussion points were used to reiterate what was previously covered in the recorded lectures. Furthermore, in each of the webinars, an appropriate part of the case scenario was integrated and used to illustrate and discuss the issues in the care of the patient. In addition, testimonials from the actual frontliners gave the participants a glimpse of what is currently happening and the challenges in the care of COVID-19 patients.
| Results|| |
In both the offerings, comments and evaluation outcomes were very favorable and many are looking forward to future offerings from the Foundation's HOPE program. [Table 3] lists selected comments from both webinar groups. In most cases, the webinars went beyond the scheduled time and the amount of discussion and idea exchange was phenomenal; something the training team rarely experience during the face-to-face workshops. The second group of participants were especially vocal in sharing their local experiences since most of them work in both government and private hospitals in the Visayas region. The discussion sharing is particularly interesting since this region is composed of several islands that are separated from each other by bodies of water.
Collaborative work between the technology and the training teams provided an avenue for mutual understanding of each other's roles, thus enhancing the working relationships between the teams. The efficient use of technology saved the training team hours of preparation prior to the event. Post webinar, automation of many forms greatly helped in organizing the documentation records and other logistical requirements.
| Conclusions|| |
The Foundation believes that altogether, these webinars were helpful in supporting the health-care providers at the time they need it most. It armed them with updated, evidence-based knowledge and skills that provided an extra layer of support as they continue to care for the unfortunate victims of the pandemic. Further, the health-care workers had an avenue to discuss cases and validate their care, not only with experts in the field but also with each other, thus creating self-assurance that they were providing the best of care under some unexplored circumstances. In turn, the team gained more experience in delivering learning materials using the wonders of technology, a learning curve for all that is more valuable in more ways than one. The Foundation hopes that the third COVID-19 webinar will be more efficient and will not focus on loss but in using palliative care concepts to maintain one's quality of life in the post-COVID era.
The whole experience of developing and executing these webinars made the training team realize that the challenges of COVID-19 mandate for social distancing can be efficiently resolved through technology and online delivery of training. In short, the training team is more than ready to undertake the Foundation's educational initiatives using different formats of delivery.
The training team sincerely thanks the faculty of this webinar series who gave not only their valuable time but their knowledge and expertise in making the content most relevant and helpful to the health-care workers participating. Furthermore, the team express their sincerest gratitude to the Foundation staff who voluntarily gave their time to share their expertise on the subject and/or host the webinars (Dr. Maria Antonia O. Yamamoto, Dr. Arabelle Coleen P. Ofina, Dr. Djhoanna A. Pedro, Dr. Mark Joseph M. Mendoza, Jose Carlo K. Quilaton, RN, Michal P. Hafallla, RN, Ms. Isobel Hernandez, Ms. Virgie I. Roldan, Ms. B-etta P. Ayon, Mr. Ricardo So Jr., Dr. Andrew E. Ang, Maria Khrizalyn Faye Q. Gutierrez, RN, Christian-Roy M. Bangloy, RN and Roger A. Strong, ACHPN, PhD, FPCN).
Financial support and sponsorship
The Ruth Foundation Leadership for Hospice Opportunity for Patient Empowerment (HOPE) Program.
Conflicts of interest
The corresponding author, Dr. Ayda G. Nambayan, is an editorial board member of Asia-Pacific Journal of Oncology Nursing. The article was subject to the journal's standard procedures, with peer review handled independently by Dr. Nambayan and their research groups.
| References|| |
[Table 1], [Table 2], [Table 3]